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Sickle Cell Disease Awareness Month: Support for Research and Treatment Access

This resolution supports designating September 2022 as Sickle Cell Disease Awareness Month. Its aim is to increase public knowledge about the disease, the need for research, early detection, and better treatment methods, which can improve the quality of life for affected individuals and their families. Citizens will be encouraged to participate in educational events.
Key points
Support for Sickle Cell Disease Awareness Month to educate the public about the condition.
Call for equitable access to innovative therapies, including gene therapies, for all who need them.
Encouragement to organize events raising awareness about sickle cell disease and available care programs.
Plea for the formation of an interagency cabinet to develop policies supporting treatment access and eliminating bias in the healthcare system.
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Additional Information
Expressing support for the designation of September 2022 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
Print number: HRES 1330
Sponsor: Rep. Davis, Danny K. [D-IL-7]
Process start date: 2022-09-02