Support for Batten Disease Awareness Day and Rare Disease Research Funding
This House of Representatives resolution supports designating June 1st as Batten Disease Awareness Day. It highlights the need for more funding for research into this and other rare diseases, which are often fatal and lack effective treatments, impacting affected families.
Key points
The resolution supports establishing a Batten Disease Awareness Day to highlight this rare, fatal neurological disorder.
It calls for increased funding for research into Batten disease and other rare diseases to find potential treatments and cures.
It notes the difficulties in diagnosis and the lack of approved therapies for most rare diseases.
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