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Support for Batten Disease Awareness Day and Rare Disease Research Funding

This House of Representatives resolution supports designating June 1st as Batten Disease Awareness Day. It highlights the need for more funding for research into this and other rare diseases, which are often fatal and lack effective treatments, impacting affected families.
Key points
The resolution supports establishing a Batten Disease Awareness Day to highlight this rare, fatal neurological disorder.
It calls for increased funding for research into Batten disease and other rare diseases to find potential treatments and cures.
It notes the difficulties in diagnosis and the lack of approved therapies for most rare diseases.
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Status:
Expired
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Additional Information
Expressing support for the designation of June 1, 2021, as "Batten Disease Awareness Day".
Print number: HRES 424
Sponsor: Rep. Garcia, Mike [R-CA-25]
Process start date: 2021-05-20
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Summarized by: gemini-2.5-flash-preview-04-17
Source data: api.congress.gov
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Summary & Status

Key Questions about Support for Batten Disease Awareness Day and Rare Disease Research Funding

A structured overview of the legislative process, official sources, status and civic context.

What is the official ID of this bill?

The official print number for this legislation is HRES 424.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2021-05-20.

What are the main provisions?

Key points include:

  • The resolution supports establishing a Batten Disease Awareness Day to highlight this rare, fatal neurological disorder.
  • It calls for increased funding for research into Batten disease and other rare diseases to find potential treatments and cures.
  • It notes the difficulties in diagnosis and the lack of approved therapies for most rare diseases.

What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Garcia, Mike [R-CA-25].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-27.

Analysis and Potential Impact of HRES 424

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Health