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Support for Patients of Color with Rare Diseases

This resolution highlights the challenges faced by people of color with rare diseases, including diagnostic delays and limited access to treatment. It emphasizes the need for increased awareness, research, and better access to care to improve the lives of these patients. It also supports recognizing the last day of February as Rare Disease Day.
Key points
Increasing awareness of rare diseases, especially among people of color who are disproportionately affected.
Supporting research and development of new treatments for rare diseases to improve access to care.
Improving medical education and patient engagement for faster diagnosis and better care.
Supporting the recognition of the last day of February as Rare Disease Day to raise public awareness.
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Status:
Expired
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Additional Information
Recognizing the extraordinary challenges faced by patients of color with rare diseases and the need to identify and promote evidenced-based solutions to alleviate the disproportionate burden of rare diseases on these communities and supporting the recognition of the last day in February as "Rare Disease Day".
Print number: HRES 948
Sponsor: Rep. Butterfield, G. K. [D-NC-1]
Process start date: 2022-02-28
System Note: Lustra is free, publicly auditable civic infrastructure, with full source code available on GitHub. You are reading sterilized legislative data, processed by our radical neutrality engine to strip political spin and retain factual mechanics. We process only official government data. Original documents remain the authoritative source, always verify them if you can.
Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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Summary & Status

Key Questions about Support for Patients of Color with Rare Diseases

A structured overview of the legislative process, official sources, status and civic context.

What is the official ID of this bill?

The official print number for this legislation is HRES 948.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2022-02-28.

What are the main provisions?

Key points include:

  • Increasing awareness of rare diseases, especially among people of color who are disproportionately affected.
  • Supporting research and development of new treatments for rare diseases to improve access to care.
  • Improving medical education and patient engagement for faster diagnosis and better care.
  • Supporting the recognition of the last day of February as Rare Disease Day to raise public awareness.

What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Butterfield, G. K. [D-NC-1].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-27.

Analysis and Potential Impact of HRES 948

We don't know, that is up to you to decide. Summarizing raw data with AI is fundamentally different from predicting socio-economic outcomes. As of 2026, we believe impact assessment strictly requires a human in the loop to verify and judge. Review our public AI processing logs for full transparency, and use Lustra to track active legislation for instant status push notifications.

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Health