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Tourette Syndrome Research Support: New Programs and Research Centers

This act aims to expand and coordinate research on Tourette syndrome by the National Institutes of Health. This means a greater chance for better understanding, diagnosis, and treatment of the condition, potentially improving the quality of life for affected individuals and their families. It also provides for data collection on the incidence of the disease and service availability.
Key points
Research Expansion: The National Institutes of Health will intensify research into Tourette syndrome, including its causes, diagnosis, and treatment.
Data Collection: A system will be developed to collect data on the incidence of Tourette syndrome in the U.S., aiding better support planning.
Research Centers: Specialized research centers will be established to conduct research and inform patients about opportunities to participate in clinical trials.
Access to Services: Centers may offer referrals for health services and cover patient care costs related to research.
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Additional Information
Print number: 117_HR_3679
Sponsor: Rep. Sires, Albio [D-NJ-8]
Process start date: 2021-06-01
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OFFICIAL LEGAL TITLE

Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 117_HR_3679.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2021-06-01.

What are the main provisions?

Key points include:

  • Research Expansion: The National Institutes of Health will intensify research into Tourette syndrome, including its causes, diagnosis, and treatment.
  • Data Collection: A system will be developed to collect data on the incidence of Tourette syndrome in the U.S., aiding better support planning.
  • Research Centers: Specialized research centers will be established to conduct research and inform patients about opportunities to participate in clinical trials.
  • Access to Services: Centers may offer referrals for health services and cover patient care costs related to research.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Sires, Albio [D-NJ-8].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-28.

CATEGORIES

Health