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Tourette Syndrome Research Support: New Programs and Research Centers

This act aims to expand and coordinate research on Tourette syndrome by the National Institutes of Health. This means a greater chance for better understanding, diagnosis, and treatment of the condition, potentially improving the quality of life for affected individuals and their families. It also provides for data collection on the incidence of the disease and service availability.
Key points
Research Expansion: The National Institutes of Health will intensify research into Tourette syndrome, including its causes, diagnosis, and treatment.
Data Collection: A system will be developed to collect data on the incidence of Tourette syndrome in the U.S., aiding better support planning.
Research Centers: Specialized research centers will be established to conduct research and inform patients about opportunities to participate in clinical trials.
Access to Services: Centers may offer referrals for health services and cover patient care costs related to research.
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Additional Information
Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021
Print number: HR 3679
Sponsor: Rep. Sires, Albio [D-NJ-8]
Process start date: 2021-06-01