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Newborn Screening Support: More Tests, Better Care, and Education

This act aims to improve newborn screening programs, leading to earlier detection of genetic conditions in infants. This means parents will receive better support and information, and children will gain faster access to treatment and long-term care, potentially significantly impacting their health and development.
Key points
Expanding educational programs for parents and families on newborn screening, testing, and follow-up care.
Increasing funding for newborn screening programs, enabling the development of new tests and improved service quality.
Establishing a publicly accessible website with information on the process for nominating conditions to the screening panel.
Strengthening laboratory oversight and coordinating national activities for monitoring the newborn screening system.
article Official text account_balance Process page
Expired
Citizen Poll
No votes cast
Additional Information
Print number: 117_HR_482
Sponsor: Rep. Roybal-Allard, Lucille [D-CA-40]
Process start date: 2021-01-25
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Summarized by: gemini-2.5-flash
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Newborn Screening Saves Lives Reauthorization Act of 2021

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 117_HR_482.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2021-01-25.

What are the main provisions?

Key points include:

  • Expanding educational programs for parents and families on newborn screening, testing, and follow-up care.
  • Increasing funding for newborn screening programs, enabling the development of new tests and improved service quality.
  • Establishing a publicly accessible website with information on the process for nominating conditions to the screening panel.
  • Strengthening laboratory oversight and coordinating national activities for monitoring the newborn screening system.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Roybal-Allard, Lucille [D-CA-40].

What is the latest detailed status?

The latest detailed status is: Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340. (consideration: CR H3026-3052; text: CR H3026-3027)

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2026-01-02.

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Health Family