What is the official ID of this bill?
The official print number for this legislation is HR 5989.
Genetic Testing for Children: Improved Diagnosis and Healthcare
This act aims to improve children's access to advanced genetic testing, which can help diagnose rare diseases faster and provide better care. It introduces pilot programs in states and facilitates Medicaid coverage for these tests, aiming to reduce financial burdens on families.
Key points
Children with suspected genetic conditions or developmental delays may more easily access genetic tests like whole genome sequencing.
The Medicaid program will support coverage for these tests, meaning families may not have to pay out-of-pocket.
The act seeks to reduce disparities in access to advanced genetic diagnostics across states and for various social groups.
Studies will be conducted on how genetic testing can improve healthcare and disease prevention, and how to remove access barriers.
Status:
Expired
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