Easier Access to Rare Disease Drugs
This new law aims to make it easier for people with rare diseases to get their medications covered by public (Medicare, Medicaid) and private insurance. It allows coverage based on broader medical evidence, not just standard lists, helping patients access needed treatments.
Key points
Makes it easier for Medicare and Medicaid to cover drugs for rare diseases, even if the use isn't standardly approved for that specific disease, as long as it's supported by medical evidence.
Requires private insurance plans to cover drugs for rare diseases if their use is supported by medical evidence.
Private insurance must implement a fast process for reviewing and appealing coverage denials for these drugs.
Expired
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