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Protecting Health Data During Pandemics: Your Privacy and Rights.

This act aims to protect your health data related to the COVID-19 pandemic. It defines who and how can collect, use, and disclose this data, giving you more control over it. The act also introduces penalties for misuse of this information and safeguards your right to vote.
Key points
Your COVID-19 related health data (e.g., test results, location) can only be collected, used, and disclosed with your explicit consent, unless necessary to protect against fraud or security threats.
You have the right to revoke consent for data processing, and companies must then delete it within 30 days.
Companies cannot use your health data for advertising, sales, employment, insurance, or housing in a discriminatory manner.
Organizations collecting data from at least 100,000 individuals must regularly publish reports on what data they collect and to whom they disclose it.
Your health data must be destroyed or made unlinkable to you after the public health emergency ends.
The act prohibits the use of health data to restrict your right to vote.
The Federal Trade Commission (FTC) will enforce these rules, and you can file a complaint if your rights are violated. You can also sue a company for violations.
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Expired
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Additional Information
Print number: 117_HR_651
Sponsor: Rep. Eshoo, Anna G. [D-CA-18]
Process start date: 2021-02-01
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Public Health Emergency Privacy Act

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 117_HR_651.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2021-02-01.

What are the main provisions?

Key points include:

  • Your COVID-19 related health data (e.g., test results, location) can only be collected, used, and disclosed with your explicit consent, unless necessary to protect against fraud or security threats.
  • You have the right to revoke consent for data processing, and companies must then delete it within 30 days.
  • Companies cannot use your health data for advertising, sales, employment, insurance, or housing in a discriminatory manner.
  • Organizations collecting data from at least 100,000 individuals must regularly publish reports on what data they collect and to whom they disclose it.
  • Your health data must be destroyed or made unlinkable to you after the public health emergency ends.
  • The act prohibits the use of health data to restrict your right to vote.
  • The Federal Trade Commission (FTC) will enforce these rules, and you can file a complaint if your rights are violated. You can also sue a company for violations.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Eshoo, Anna G. [D-CA-18].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Consumer Protection and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-28.

CATEGORIES

Health Courts and Law