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Sickle Cell Disease Treatment: New Centers, Better Care

This act establishes a program to support individuals with sickle cell disease and similar blood disorders. Specialized treatment centers will be created to provide coordinated medical care, education, and support for patients and their families. The goal is to improve access to treatment and quality of life for those affected, regardless of their location.
Key points
New sickle cell disease treatment centers will be established, offering comprehensive medical care, including psychological and social support.
The program aims to improve access to treatment, including telemedicine and transportation, and to educate patients and medical staff.
A national coordinating center will be created to oversee activities and collect data, helping to monitor and improve care for patients.
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Additional Information
Print number: 117_HR_8855
Sponsor: Rep. Lee, Barbara [D-CA-13]
Process start date: 2022-09-15