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National Phenylketonuria Awareness Day: Raising Knowledge of a Rare Disease

The U.S. Senate designated December 3, 2021, as National Phenylketonuria (PKU) Awareness Day. This aims to increase public understanding of this rare genetic disorder, which requires a special diet and medical foods to prevent severe health issues. The designation seeks to highlight the importance of early detection and lifelong treatment of PKU for improving the quality of life for affected individuals.
Key points
Designates December 3 as National Phenylketonuria (PKU) Awareness Day to educate the public about this rare genetic disorder.
Emphasizes the critical role of medical foods and strict diet in managing PKU to prevent brain damage and other serious health problems.
Highlights challenges in accessing medical foods and underscores the need for continued research into PKU.
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Status:
Adopted
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Additional Information
A resolution designating December 3, 2021, as "National Phenylketonuria Awareness Day".
Print number: SRES 469
Sponsor: Sen. Lee, Mike [R-UT]
Process start date: 2021-12-06
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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Summary & Status

Key Questions about National Phenylketonuria Awareness Day: Raising Knowledge of a Rare Disease

A structured overview of the legislative process, official sources, status and civic context.

What is the official ID of this bill?

The official print number for this legislation is SRES 469.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2021-12-06.

What are the main provisions?

Key points include:

  • Designates December 3 as National Phenylketonuria (PKU) Awareness Day to educate the public about this rare genetic disorder.
  • Emphasizes the critical role of medical foods and strict diet in managing PKU to prevent brain damage and other serious health problems.
  • Highlights challenges in accessing medical foods and underscores the need for continued research into PKU.

What is the specific legal status?

The current status is Adopted.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Lee, Mike [R-UT].

What is the latest detailed status?

The latest detailed status is: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S8936; text: CR S8935)

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-29.

Analysis and Potential Impact of SRES 469

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Health