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Rare Disease Day: Raising Awareness and Supporting Research

The U.S. Senate designated February 28, 2022, as Rare Disease Day. This aims to increase public awareness of these conditions, which affect millions of Americans, and emphasize the need for further research and effective treatments. Citizens with rare diseases and their families can expect greater support in accessing diagnosis and treatment.
Key points
The designation of Rare Disease Day aims to highlight the challenges faced by individuals with these conditions, including difficulties in diagnosis and limited access to treatment.
It emphasizes the importance of accurate and early diagnosis and supporting national and global efforts to develop effective treatments and diagnostics.
The resolution acknowledges progress in rare disease research, stemming from previous acts like the Orphan Drug Act, offering hope for new therapies for patients.
article Official text account_balance Process page
Adopted
Citizen Poll
No votes cast
Additional Information
Print number: 117_SRES_523
Sponsor: Sen. Brown, Sherrod [D-OH]
Process start date: 2022-02-17