arrow_back Trending Legislation
Share share

Rare Disease Day: Raising Awareness and Supporting Research

The U.S. Senate designated February 28, 2022, as Rare Disease Day. This aims to increase public awareness of these conditions, which affect millions of Americans, and emphasize the need for further research and effective treatments. Citizens with rare diseases and their families can expect greater support in accessing diagnosis and treatment.
Key points
The designation of Rare Disease Day aims to highlight the challenges faced by individuals with these conditions, including difficulties in diagnosis and limited access to treatment.
It emphasizes the importance of accurate and early diagnosis and supporting national and global efforts to develop effective treatments and diagnostics.
The resolution acknowledges progress in rare disease research, stemming from previous acts like the Orphan Drug Act, offering hope for new therapies for patients.
article Official text account_balance Process page notifications_active Track this Bill
gavel
Status:
Adopted
Record your position for audit.
Why does your vote on bills matter?
It creates raw, undeniable proof. Civic Will provides the permanent data to verify the Government's loyalty towards its citizens (explained here). Start recording it now.
Additional Information
A resolution designating February 28, 2022, as "Rare Disease Day".
Print number: SRES 523
Sponsor: Sen. Brown, Sherrod [D-OH]
Process start date: 2022-02-17