Supporting World Sickle Cell Awareness Day: Improving Access to Treatment
The U.S. Senate supports World Sickle Cell Awareness Day, emphasizing the need to improve access to treatment and research. The resolution aims to raise awareness about this genetic disease and eliminate barriers to innovative therapies, especially for the most vulnerable.
Key points
Supports global and domestic efforts to combat sickle cell disease, including newborn screening programs.
Calls for eliminating barriers to access innovative therapies, including gene therapies, within Medicare and Medicaid systems.
Encourages organizing events to raise public awareness about sickle cell traits and related patient services.
Status:
Expired
Record your position for audit.
Why does your vote on bills matter?
It creates raw, undeniable proof. Civic Will provides the permanent data to verify the Government's loyalty towards its citizens
(explained here).
Start recording it now.