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Genomics Data Security: Protecting US Citizens' Health Information

This act aims to enhance the security of Americans' genomic data, especially concerning collaborations with foreign entities. It introduces new rules on who can process sensitive health data and how it is protected, intending to safeguard citizens' privacy and medical information.
Key points
Prohibits public funds for genomic services from companies controlled by the Chinese government.
Requires disclosure of medical laboratories' ties to the Chinese government on certificates.
Mandates annual reporting on undisclosed foreign government ties of researchers.
Establishes a working group to develop best practices for secure genomic data sharing.
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Expired
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Additional Information
Print number: 117_S_1744
Sponsor: Sen. Rubio, Marco [R-FL]
Process start date: 2021-05-20
Lustra uses Artificial Intelligence. Verify details in source documents.
Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Genomics Data Security Act

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 117_S_1744.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2021-05-20.

What are the main provisions?

Key points include:

  • Prohibits public funds for genomic services from companies controlled by the Chinese government.
  • Requires disclosure of medical laboratories' ties to the Chinese government on certificates.
  • Mandates annual reporting on undisclosed foreign government ties of researchers.
  • Establishes a working group to develop best practices for secure genomic data sharing.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Rubio, Marco [R-FL].

What is the latest detailed status?

The latest detailed status is: Introduced in Senate

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-29.

CATEGORIES

Health Security