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Genomics Data Security: Protecting US Citizens' Health Information

This act aims to enhance the security of Americans' genomic data, especially concerning collaborations with foreign entities. It introduces new rules on who can process sensitive health data and how it is protected, intending to safeguard citizens' privacy and medical information.
Key points
Prohibits public funds for genomic services from companies controlled by the Chinese government.
Requires disclosure of medical laboratories' ties to the Chinese government on certificates.
Mandates annual reporting on undisclosed foreign government ties of researchers.
Establishes a working group to develop best practices for secure genomic data sharing.
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Additional Information
Genomics Data Security Act
Print number: S 1744
Sponsor: Sen. Rubio, Marco [R-FL]
Process start date: 2021-05-20