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Accelerated Access to ALS and Neurodegenerative Disease Therapies

This act aims to speed up research and access to new drugs for individuals suffering from Amyotrophic Lateral Sclerosis (ALS) and other rare neurodegenerative diseases. Citizens may gain faster access to experimental therapies, as well as support for research into these conditions, potentially improving their quality of life and treatment prospects.
Key points
Financial support for research into new drugs for ALS and other rare neurodegenerative diseases.
Facilitating patient access to experimental drugs still in the research phase.
Establishing a public-private partnership to accelerate therapy development.
Developing an action plan by the Food and Drug Administration (FDA) for faster drug market entry.
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Status:
Expired
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Additional Information
Accelerating Access to Critical Therapies for ALS Act
Print number: S 1813
Sponsor: Sen. Coons, Christopher A. [D-DE]
Process start date: 2021-05-25
System Note: Lustra is free, publicly auditable civic infrastructure, with full source code available on GitHub. You are reading sterilized legislative data, processed by our radical neutrality engine to strip political spin and retain factual mechanics. We process only official government data. Original documents remain the authoritative source, always verify them if you can.
Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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Summary & Status

Key Questions about Accelerated Access to ALS and Neurodegenerative Disease Therapies

A structured overview of the legislative process, official sources, status and civic context.

What is the official ID of this bill?

The official print number for this legislation is S 1813.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2021-05-25.

What are the main provisions?

Key points include:

  • Financial support for research into new drugs for ALS and other rare neurodegenerative diseases.
  • Facilitating patient access to experimental drugs still in the research phase.
  • Establishing a public-private partnership to accelerate therapy development.
  • Developing an action plan by the Food and Drug Administration (FDA) for faster drug market entry.

What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Coons, Christopher A. [D-DE].

What is the latest detailed status?

The latest detailed status is: Introduced in Senate

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-29.

Analysis and Potential Impact of S 1813

We don't know, that is up to you to decide. Summarizing raw data with AI is fundamentally different from predicting socio-economic outcomes. As of 2026, we believe impact assessment strictly requires a human in the loop to verify and judge. Review our public AI processing logs for full transparency, and use Lustra to track active legislation for instant status push notifications.

CATEGORIES

Health