Easier Genetic Diagnosis for Children via Whole Genome Sequencing
This act aims to facilitate states' access to genetic testing (whole genome sequencing) for children with undiagnosed or suspected genetic diseases under the Medicaid program. This allows children and their parents to receive a quicker diagnosis, potentially improving their treatment and quality of life. States opting to implement these services will receive increased financial support from the federal government.
Key points
Children under 21 (or younger, depending on the state) with suspected genetic conditions can access advanced genetic testing (whole genome sequencing) through Medicaid.
The federal government will cover 75% of these testing costs for the first three years, encouraging states to adopt them.
Hospitals will be required to refer children with undiagnosed issues to qualified whole genome sequencing providers.
The goal is faster diagnosis and better treatment for children with rare or undiagnosed genetic diseases.
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