What is the official ID of this bill?
The official print number for this legislation is S 3389.
Improved Healthcare for Sickle Cell Disease Patients
This act establishes a demonstration project to enhance access to high-quality outpatient care for individuals with sickle cell disease, particularly young adults and pregnant women. The program aims to improve treatment coordination, access to specialists, and mental health and social support services, ultimately reducing healthcare costs and improving patients' quality of life.
Key points
A 5-year demonstration project will improve medical care for individuals with sickle cell disease, including young adults and pregnant women.
Participating states will receive financial support to create care teams, identify treatment barriers, and implement best practices.
Sickle cell disease patients will gain better access to medications, pain management, specialists, mental health services, and medical transportation.
States will receive 100% reimbursement for sickle cell disease treatment costs under the program, encouraging investment in better care.
Status:
Expired
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