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Increased Research and Treatment for Rare Brain Disease (CCM)

This act aims to boost research, education, and treatment accessibility for individuals suffering from Cerebral Cavernous Malformations (CCM), a rare blood vessel disease. Citizens can expect improved diagnostics, new treatment methods, and greater awareness of this condition, potentially enhancing their quality of life and that of their families.
Key points
Increased funding and coordination for CCM research, including the search for new drugs and gene therapies.
Establishment of a network of research and clinical centers to improve CCM diagnosis and treatment nationwide.
Development of educational programs for patients, families, and medical professionals to raise awareness and facilitate early detection.
Support for the development of new diagnostic tools and methods for assessing treatment effectiveness, accelerating innovation.
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Expired
Citizen Poll
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Additional Information
Print number: 117_S_3390
Sponsor: Sen. Lujan, Ben Ray [D-NM]
Process start date: 2021-12-14
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

CCM–CARE Act of 2021

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 117_S_3390.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2021-12-14.

What are the main provisions?

Key points include:

  • Increased funding and coordination for CCM research, including the search for new drugs and gene therapies.
  • Establishment of a network of research and clinical centers to improve CCM diagnosis and treatment nationwide.
  • Development of educational programs for patients, families, and medical professionals to raise awareness and facilitate early detection.
  • Support for the development of new diagnostic tools and methods for assessing treatment effectiveness, accelerating innovation.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Lujan, Ben Ray [D-NM].

What is the latest detailed status?

The latest detailed status is: Introduced in Senate

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-29.

CATEGORIES

Health