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Protecting Reproductive and Sexual Health Data: Your Rights

This act aims to give you more control over your reproductive and sexual health data collected by companies and organizations. It requires them to limit collection and sharing of this data and grants you the right to access and delete it. If your rights are violated, you can take legal action.
Key points
Companies can only collect, keep, or share your reproductive/sexual health data with your clear permission or when strictly needed for a service you requested.
You have the right to see what reproductive/sexual health data a company has about you and who they shared it with.
You have the right to ask for your reproductive/sexual health data to be deleted.
Companies must provide easy ways (including online) to access and delete your data, free of charge.
Companies must have clear privacy policies about this data.
The act allows you to sue for damages if your rights are violated, preventing companies from forcing arbitration.
The act does not limit existing federal or state laws that offer stronger privacy protection.
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Expired
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Additional Information
Print number: 117_S_4434
Sponsor: Sen. Hirono, Mazie K. [D-HI]
Process start date: 2022-06-16
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Summarized by: gemini-2.5-flash-preview-04-17
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

My Body, My Data Act of 2022

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 117_S_4434.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2022-06-16.

What are the main provisions?

Key points include:

  • Companies can only collect, keep, or share your reproductive/sexual health data with your clear permission or when strictly needed for a service you requested.
  • You have the right to see what reproductive/sexual health data a company has about you and who they shared it with.
  • You have the right to ask for your reproductive/sexual health data to be deleted.
  • Companies must provide easy ways (including online) to access and delete your data, free of charge.
  • Companies must have clear privacy policies about this data.
  • The act allows you to sue for damages if your rights are violated, preventing companies from forcing arbitration.
  • The act does not limit existing federal or state laws that offer stronger privacy protection.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Hirono, Mazie K. [D-HI].

What is the latest detailed status?

The latest detailed status is: Introduced in Senate

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-29.

CATEGORIES

Health Informatization Courts and Law