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Protecting Health Data Privacy During COVID-19 Emergency

This act aims to protect the privacy of health data collected during the COVID-19 pandemic. It establishes rules for collecting, using, and disclosing this data, requiring citizen consent and prohibiting its use for commercial purposes like advertising or employment discrimination. It also grants citizens control over their data and the ability to seek remedies for violations.
Key points
Your COVID-19 related health data (e.g., test results, location) can only be collected, used, and shared with your explicit consent.
Companies and organizations collecting this data cannot use it for advertising, discrimination in employment, insurance, or access to services.
You have the right to know what data is collected, how it's used, and can withdraw your consent, leading to data deletion.
This data must be destroyed after the public health emergency ends, unless other laws require its retention.
The act prohibits using health data to restrict voting rights.
In case of violations, individuals can seek damages in court.
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Expired
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Additional Information
Print number: 117_S_81
Sponsor: Sen. Blumenthal, Richard [D-CT]
Process start date: 2021-01-28
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Public Health Emergency Privacy Act

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 117_S_81.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2021-01-28.

What are the main provisions?

Key points include:

  • Your COVID-19 related health data (e.g., test results, location) can only be collected, used, and shared with your explicit consent.
  • Companies and organizations collecting this data cannot use it for advertising, discrimination in employment, insurance, or access to services.
  • You have the right to know what data is collected, how it's used, and can withdraw your consent, leading to data deletion.
  • This data must be destroyed after the public health emergency ends, unless other laws require its retention.
  • The act prohibits using health data to restrict voting rights.
  • In case of violations, individuals can seek damages in court.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Blumenthal, Richard [D-CT].

What is the latest detailed status?

The latest detailed status is: Introduced in Senate

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-29.

CATEGORIES

Health Courts and Law