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Support for Rare Disease Day: Boosting Awareness and Research

The House of Representatives resolution expresses support for designating February 29, 2024, as Rare Disease Day. This aims to increase public awareness of these conditions, encourage early diagnosis, and support global efforts in finding effective treatments and diagnostics. For citizens, this potentially means better access to information, faster diagnosis, and greater chances for the development of new therapies for those affected by rare diseases.
Key points
The designation of Rare Disease Day aims to highlight over 7,000 known rare diseases affecting more than 25 million Americans.
It emphasizes the importance of early and accurate diagnosis, which can shorten patients' journey to appropriate treatment.
It supports national and international efforts to develop new drugs and treatments, offering hope for improving the quality of life for patients and their families.
It recalls existing programs and acts, such as the Orphan Drug Act, which already support research and development of therapies for rare diseases.
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Additional Information
Print number: 118_HRES_1036
Sponsor: Rep. Carson, André [D-IN-7]
Process start date: 2024-02-29
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Expressing support for the designation of February 29, 2024, as "Rare Disease Day".

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HRES_1036.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2024-02-29.

What are the main provisions?

Key points include:

  • The designation of Rare Disease Day aims to highlight over 7,000 known rare diseases affecting more than 25 million Americans.
  • It emphasizes the importance of early and accurate diagnosis, which can shorten patients' journey to appropriate treatment.
  • It supports national and international efforts to develop new drugs and treatments, offering hope for improving the quality of life for patients and their families.
  • It recalls existing programs and acts, such as the Orphan Drug Act, which already support research and development of therapies for rare diseases.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Carson, André [D-IN-7].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-24.

CATEGORIES

Health