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Sickle Cell Awareness Day Support: Better Detection and Treatment Access

This resolution supports designating June 19 as World Sickle Cell Awareness Day to boost public knowledge about the disease. It aims to improve access to screenings, treatments, and preventive care programs, significantly impacting the health and quality of life for affected individuals, especially vulnerable populations.
Key points
Increasing public awareness of sickle cell disease and its complications.
Supporting scientific research, early detection, and new treatment methods.
Striving for equitable access to innovative therapies for all social groups, including within Medicare and Medicaid systems.
Encouraging the creation of support and education programs for patients and their families.
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Additional Information
Expressing support for the designation of June 19, 2024, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Print number: HRES 1304
Sponsor: Rep. Davis, Danny K. [D-IL-7]
Process start date: 2024-06-18