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Support for World FSHD Day: Raising Awareness and Research for the Disease

This House of Representatives resolution supports designating June 20, 2024, as "World FSHD Day." Its aim is to increase awareness of facioscapulohumeral muscular dystrophy (FSHD), encourage early diagnosis, and support research into new treatments and improved quality of life for those affected. For citizens, this means potentially better access to information, diagnosis, and future therapies.
Key points
The establishment of "World FSHD Day" aims to raise public awareness of this rare genetic disease.
The resolution emphasizes the need for early and accurate diagnosis of FSHD through genetic testing, which can reduce diagnostic delays.
It supports funding for scientific research and the development of new treatments, diagnostics, and support programs for patients and their caregivers.
It highlights the challenges faced by individuals with FSHD, such as pain, fatigue, loss of mobility, and difficulties in daily life.
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Additional Information
Print number: 118_HRES_1307
Sponsor: Rep. Dingell, Debbie [D-MI-6]
Process start date: 2024-06-18
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Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Expressing support for the designation of June 20, 2024, as "World FSHD Day".

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HRES_1307.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2024-06-18.

What are the main provisions?

Key points include:

  • The establishment of "World FSHD Day" aims to raise public awareness of this rare genetic disease.
  • The resolution emphasizes the need for early and accurate diagnosis of FSHD through genetic testing, which can reduce diagnostic delays.
  • It supports funding for scientific research and the development of new treatments, diagnostics, and support programs for patients and their caregivers.
  • It highlights the challenges faced by individuals with FSHD, such as pain, fatigue, loss of mobility, and difficulties in daily life.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Dingell, Debbie [D-MI-6].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Energy and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-24.

CATEGORIES

Health