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Prader-Willi Syndrome Awareness Day: Support for Research and Education

The U.S. House of Representatives supports designating May 15 as Prader-Willi Syndrome Awareness Day. This aims to increase public understanding of this rare genetic disorder, promote research, and support affected individuals and their families. The initiative seeks to improve patients' quality of life and accelerate the search for effective treatments.
Key points
Designating Prader-Willi Syndrome Awareness Day aims to boost public knowledge of this rare condition, potentially leading to earlier diagnosis and access to support.
Support for research into Prader-Willi Syndrome could lead to a better understanding of the disorder, new treatments, and a potential cure, improving the lives of patients and their families.
Emphasizing the importance of early diagnosis and access to specialized care, which is crucial for managing symptoms and enhancing the quality of life for individuals with Prader-Willi Syndrome.
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Additional Information
Print number: 118_HRES_404
Sponsor: Rep. Tonko, Paul [D-NY-20]
Process start date: 2023-05-15
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Expressing support for the designation of May 15, 2023, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HRES_404.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2023-05-15.

What are the main provisions?

Key points include:

  • Designating Prader-Willi Syndrome Awareness Day aims to boost public knowledge of this rare condition, potentially leading to earlier diagnosis and access to support.
  • Support for research into Prader-Willi Syndrome could lead to a better understanding of the disorder, new treatments, and a potential cure, improving the lives of patients and their families.
  • Emphasizing the importance of early diagnosis and access to specialized care, which is crucial for managing symptoms and enhancing the quality of life for individuals with Prader-Willi Syndrome.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Tonko, Paul [D-NY-20].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-24.

CATEGORIES

Health