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Ehlers-Danlos Syndrome Awareness Month: Support for Research and Knowledge

This House Resolution supports designating May as Ehlers-Danlos Syndrome Awareness Month. The goal is to increase public knowledge of this rare genetic disease, which can lead to earlier diagnosis and improved quality of life for affected individuals, as well as encourage further research into treatments.
Key points
Increasing public awareness of Ehlers-Danlos Syndrome, potentially leading to earlier diagnosis.
Supporting scientific research and funding to find treatments and a cure for the disease.
Honoring individuals bravely suffering from Ehlers-Danlos Syndrome.
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Additional Information
Print number: 118_HRES_419
Sponsor: Rep. Ruppersberger, C. A. Dutch [D-MD-2]
Process start date: 2023-05-17
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OFFICIAL LEGAL TITLE

Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HRES_419.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2023-05-17.

What are the main provisions?

Key points include:

  • Increasing public awareness of Ehlers-Danlos Syndrome, potentially leading to earlier diagnosis.
  • Supporting scientific research and funding to find treatments and a cure for the disease.
  • Honoring individuals bravely suffering from Ehlers-Danlos Syndrome.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Ruppersberger, C. A. Dutch [D-MD-2].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-24.

CATEGORIES

Health