arrow_back Trending Legislation
Share share

Ehlers-Danlos Syndrome Awareness Month: Support for Research and Knowledge

This House Resolution supports designating May as Ehlers-Danlos Syndrome Awareness Month. The goal is to increase public knowledge of this rare genetic disease, which can lead to earlier diagnosis and improved quality of life for affected individuals, as well as encourage further research into treatments.
Key points
Increasing public awareness of Ehlers-Danlos Syndrome, potentially leading to earlier diagnosis.
Supporting scientific research and funding to find treatments and a cure for the disease.
Honoring individuals bravely suffering from Ehlers-Danlos Syndrome.
article Official text account_balance Process page notifications_active Track this Bill
gavel
Status:
Expired
Record your position for audit.
Why does your vote on bills matter?
It creates raw, undeniable proof. Civic Will provides the permanent data to verify the Government's loyalty towards its citizens (explained here). Start recording it now.
Additional Information
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
Print number: HRES 419
Sponsor: Rep. Ruppersberger, C. A. Dutch [D-MD-2]
Process start date: 2023-05-17