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Support for Batten Disease Awareness Day

The U.S. House of Representatives expresses support for designating June 9 as Batten Disease Awareness Day. This aims to increase public knowledge about this rare, fatal nervous system disorder primarily affecting children, potentially leading to earlier diagnosis and better support for families.
Key points
Designating Batten Disease Awareness Day aims to boost public understanding of this rare and severe condition.
Increased awareness could lead to earlier symptom recognition and improved diagnosis, which is vital for patients and their families.
Batten disease is a genetic disorder causing loss of brain function, vision, and motor skills, with no known cure currently available.
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Additional Information
Print number: 118_HRES_485
Sponsor: Rep. Bean, Aaron [R-FL-4]
Process start date: 2023-06-09
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Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Expressing support for the designation of "Batten Disease Awareness Day" on June 9.

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HRES_485.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2023-06-09.

What are the main provisions?

Key points include:

  • Designating Batten Disease Awareness Day aims to boost public understanding of this rare and severe condition.
  • Increased awareness could lead to earlier symptom recognition and improved diagnosis, which is vital for patients and their families.
  • Batten disease is a genetic disorder causing loss of brain function, vision, and motor skills, with no known cure currently available.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Bean, Aaron [R-FL-4].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Oversight and Accountability.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-24.

CATEGORIES

Health