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Support for Sickle Cell Awareness Day: Research and Treatment Access

This House Resolution supports designating June 19 as World Sickle Cell Awareness Day. The aim is to increase public knowledge about the disease, emphasize the need for research, early detection, and access to new treatments, which can improve the quality of life for affected individuals.
Key points
Designating Sickle Cell Awareness Day aims to boost public understanding of the disease and its impacts.
Support for scientific research, early detection of sickle cell trait carriers, and development of new, effective therapies.
Calls for equitable access to treatments, including gene therapies, within Medicare and Medicaid systems.
Encourages the creation of preventative care programs and patient support worldwide.
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Expired
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Additional Information
Print number: 118_HRES_514
Sponsor: Rep. Davis, Danny K. [D-IL-7]
Process start date: 2023-06-15
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HRES_514.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2023-06-15.

What are the main provisions?

Key points include:

  • Designating Sickle Cell Awareness Day aims to boost public understanding of the disease and its impacts.
  • Support for scientific research, early detection of sickle cell trait carriers, and development of new, effective therapies.
  • Calls for equitable access to treatments, including gene therapies, within Medicare and Medicaid systems.
  • Encourages the creation of preventative care programs and patient support worldwide.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Davis, Danny K. [D-IL-7].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-24.

CATEGORIES

Health