arrow_back Back to App

Support for Rare Disease Treatment: Tax Credits and Research

This law aims to improve access to rare disease medications by increasing tax credits for companies that produce them. Additionally, it mandates the Centers for Disease Control and Prevention (CDC) to study how to better track and collect data on rare diseases, which could aid in their diagnosis and treatment. Citizens may benefit from potentially greater availability and development of rare disease drugs.
Key points
Increases the tax credit for companies developing orphan drugs from 25% to 50%, potentially encouraging more research and production.
Requires the CDC to conduct a feasibility study on enhancing infrastructure for tracking rare diseases, aiming for better understanding and management.
The CDC study will cover mortality rates, treatment potential, demographics, and disease progression, crucial for addressing rare conditions.
article Official text account_balance Process page
Expired
Citizen Poll
No votes cast
Additional Information
Print number: 118_HR_1350
Sponsor: Rep. Gottheimer, Josh [D-NJ-5]
Process start date: 2023-03-03