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Improved ALS Care: New Medicare Benefits and Research Support

This act aims to enhance access to specialized care for individuals with Amyotrophic Lateral Sclerosis (ALS) by expanding Medicare benefits. It establishes a new payment system for ALS-related services, intended to reduce wait times and improve patients' quality of life. Additionally, the act seeks to support ALS clinical trials.
Key points
Expansion of Medicare to cover specialized services for individuals with ALS, including physician, therapist, and nurse support.
Introduction of a new payment system for healthcare facilities providing ALS care, ensuring better funding and service availability.
Support for ALS clinical trials through additional payments for facilities participating in testing new therapies.
Increased access to remote medical management (telehealth) for ALS patients, especially in rural areas.
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Additional Information
Print number: 118_HR_5663
Sponsor: Rep. Schakowsky, Janice D. [D-IL-9]
Process start date: 2023-09-21