Pediatric Brain Cancer Data Registry Program
This act aims to improve research into rare pediatric brain tumors like ATRT. It will enable doctors and researchers to better collect and use patient data, accelerating the development of new, more effective treatments. This means a greater chance of recovery and a better quality of life for affected children.
Key points
Establishment and maintenance of a real-world data registry for children with rare brain tumors, including ATRT.
Utilization of collected data to design better clinical trials, especially for rare diseases.
Financial support for research institutions specializing in pediatric neuro-oncology.
Expired
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