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Informational Support for Down Syndrome Diagnoses

This new law requires health insurance plans to provide crucial information and support resources to families who receive a Down syndrome diagnosis for a child or fetus. The aim is to ensure access to reliable knowledge and assistance, enabling citizens to make informed decisions and find appropriate support.
Key points
Insurance plans must provide written, up-to-date, and evidence-based information about Down syndrome within 60 days of diagnosis.
This information includes details on developmental, educational, and psychosocial outcomes, developed by medical experts and advocacy groups.
The act also provides contact information for organizations specializing in Down syndrome support.
These changes apply to plan years beginning on or after January 1, 2024.
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Additional Information
Print number: 118_HR_6412
Sponsor: Rep. Molinaro, Marcus J. [R-NY-19]
Process start date: 2023-11-14
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Summarized by: gemini-2.5-flash-preview-05-20
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Down Syndrome Diagnosis Act

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HR_6412.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2023-11-14.

What are the main provisions?

Key points include:

  • Insurance plans must provide written, up-to-date, and evidence-based information about Down syndrome within 60 days of diagnosis.
  • This information includes details on developmental, educational, and psychosocial outcomes, developed by medical experts and advocacy groups.
  • The act also provides contact information for organizations specializing in Down syndrome support.
  • These changes apply to plan years beginning on or after January 1, 2024.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Molinaro, Marcus J. [R-NY-19].

What is the latest detailed status?

The latest detailed status is: Referred to the Subcommittee on Health.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-25.

CATEGORIES

Health Family