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Informational Support for Down Syndrome Diagnoses

This new law requires health insurance plans to provide crucial information and support resources to families who receive a Down syndrome diagnosis for a child or fetus. The aim is to ensure access to reliable knowledge and assistance, enabling citizens to make informed decisions and find appropriate support.
Key points
Insurance plans must provide written, up-to-date, and evidence-based information about Down syndrome within 60 days of diagnosis.
This information includes details on developmental, educational, and psychosocial outcomes, developed by medical experts and advocacy groups.
The act also provides contact information for organizations specializing in Down syndrome support.
These changes apply to plan years beginning on or after January 1, 2024.
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Additional Information
Down Syndrome Diagnosis Act
Print number: HR 6412
Sponsor: Rep. Molinaro, Marcus J. [R-NY-19]
Process start date: 2023-11-14