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Endometriosis CARE Act: Boosting Research, Awareness, and Treatment Access

This bill aims to improve the lives of individuals with endometriosis by significantly increasing funding for research (up to $50 million annually) to find better treatments and a cure. It mandates an analysis of barriers to accessing care, including insurance coverage gaps and costs, which could lead to easier access to necessary healthcare services. Furthermore, the Act establishes public and professional education programs to improve early detection and the quality of treatment.
Key points
Increased Research Funding: Authorizes $50 million annually (2025-2029) for the National Institutes of Health to conduct research on endometriosis, including developing better treatments and a cure.
Identifying Access Barriers: Requires the government to analyze why patients face difficulties accessing treatment (e.g., lack of insurance coverage, high costs, provider shortages) to help remove these obstacles.
Public and Professional Education: Establishes public awareness campaigns and disseminates information to healthcare providers to improve diagnosis, care quality, and support for patients.
Study on Disparities: Mandates a study by the National Academies on disparities in endometriosis prevalence, detection, and treatment outcomes based on race, ethnicity, and insurance status.
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Additional Information
Print number: 118_HR_8565
Sponsor: Rep. Williams, Nikema [D-GA-5]
Process start date: 2024-05-23