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New Sickle Cell Treatment Centers: Coordinated Lifelong Care and Support

This act establishes a national network of specialized Sickle Cell Disease Treatment Centers using a "hub-and-spoke" model to ensure coordinated, lifelong care for patients. The program aims to improve health outcomes, facilitate the transition from pediatric to adult care, and provide crucial support, including assistance with health insurance access and transportation costs for treatment. It also mandates increased public awareness and data collection regarding the disease.
Key points
Creation of specialized treatment networks (hubs and spokes) offering comprehensive care, including advanced treatments like gene therapy and stem cell transplants.
Financial assistance available to patients for securing health insurance (premiums/cost-sharing) and reimbursement for travel to treatment centers.
Integration of community organizations to address social barriers to health, such as food insecurity, housing issues, and lack of transportation.
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Expired
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Additional Information
Print number: 118_HR_9872
Sponsor: Rep. Lee, Barbara [D-CA-12]
Process start date: 2024-09-27
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Summarized by: gemini-2.5-flash-preview-09-2025
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Sickle Cell Disease Treatment Centers Act of 2024

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_HR_9872.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2024-09-27.

What are the main provisions?

Key points include:

  • Creation of specialized treatment networks (hubs and spokes) offering comprehensive care, including advanced treatments like gene therapy and stem cell transplants.
  • Financial assistance available to patients for securing health insurance (premiums/cost-sharing) and reimbursement for travel to treatment centers.
  • Integration of community organizations to address social barriers to health, such as food insecurity, housing issues, and lack of transportation.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Lee, Barbara [D-CA-12].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Energy and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-26.

CATEGORIES

Health