Senate Supports Sickle Cell Awareness Day and Equitable Access to Gene Therapy.
The US Senate supports designating June 19 as World Sickle Cell Awareness Day to boost public knowledge and research into cures. The resolution calls for immediate action to improve health outcomes by ensuring equitable access to new treatments. Crucially, it urges the removal of financial barriers within Medicare and Medicaid for vulnerable patients needing innovative cell and gene therapies.
Key points
Pushes to eliminate financial barriers in Medicare and Medicaid systems, ensuring vulnerable patients can access innovative treatments like gene and cell therapies for SCD.
Calls for the formation of a federal interagency group to address equitable access to therapies and combat systemic bias faced by the SCD population in healthcare.
Stresses the ongoing need for increased research, early detection screenings, and preventative care programs globally and domestically.
Expired
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