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Rare Disease Day Designation: Boosting Awareness and Research Support.

The U.S. Senate officially designated February 29, 2024, as Rare Disease Day. This resolution aims to highlight the challenges faced by over 30 million Americans living with rare conditions and emphasizes the critical need for early diagnosis and accelerated research into new treatments. This recognition supports patients and their families by promoting public awareness and advocacy.
Key points
Officially designates Rare Disease Day to increase public awareness of conditions affecting over 30 million citizens.
Recognizes the importance of supporting national and global research efforts to speed up the development of effective treatments and diagnostics.
Highlights the difficulties patients face in obtaining accurate diagnoses and finding specialized medical expertise.
article Official text account_balance Process page
Adopted
Citizen Poll
No votes cast
Additional Information
Print number: 118_SRES_636
Sponsor: Sen. Brown, Sherrod [D-OH]
Process start date: 2024-04-10