What is the official ID of this bill?
The official print number for this legislation is SRES 738.
Sickle Cell Disease: Awareness Day and Mandate for Equitable Access to Gene Therapies.
The US Senate supports designating June 19 as World Sickle Cell Awareness Day to boost public awareness and research efforts. The resolution calls on federal agencies, including Medicare and Medicaid, to eliminate barriers and ensure equitable access to innovative treatments, such as gene therapies, for all patients. This action aims to improve the quality of life for affected individuals and address systemic bias in healthcare.
Key points
Calls for ensuring equitable access to innovative therapies (including gene and cell therapies) for Sickle Cell Disease patients, regardless of economic or ethnic background.
Encourages the President to form an Interagency Group to develop policies that improve access to treatment within Medicare and Medicaid and address racial bias faced by affected populations.
Status:
Expired
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