arrow_back Back to App

Designating Rare Disease Day: Boosting Awareness and Supporting Treatment Research

The U.S. Senate officially designated February 28, 2023, as Rare Disease Day. This resolution aims to draw attention to the over 25 million Americans living with rare disorders, 90% of whom lack an FDA-approved treatment. The designation supports national and global efforts to encourage early diagnosis, improve awareness, and accelerate the development of effective treatments and cures for these serious conditions.
Key points
Formal recognition of February 28 as Rare Disease Day to increase public and political awareness of these conditions.
Support for efforts to accelerate research, early diagnosis, and the development of treatments for rare diseases, many of which are life-threatening.
Highlighting the challenges faced by patients, including difficulties in obtaining accurate diagnoses and accessing specialized care.
article Official text account_balance Process page
Adopted
Citizen Poll
No votes cast
Additional Information
Print number: 118_SRES_84
Sponsor: Sen. Brown, Sherrod [D-OH]
Process start date: 2023-02-28
Lustra uses Artificial Intelligence. Verify details in source documents.
Summarized by: gemini-2.5-flash-preview-09-2025
Source data: api.congress.gov
AI work logs for this document launch

OFFICIAL LEGAL TITLE

A resolution designating February 28, 2023, as "Rare Disease Day".

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_SRES_84.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2023-02-28.

What are the main provisions?

Key points include:

  • Formal recognition of February 28 as Rare Disease Day to increase public and political awareness of these conditions.
  • Support for efforts to accelerate research, early diagnosis, and the development of treatments for rare diseases, many of which are life-threatening.
  • Highlighting the challenges faced by patients, including difficulties in obtaining accurate diagnoses and accessing specialized care.
What is the specific legal status?

The current status is Adopted.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Brown, Sherrod [D-OH].

What is the latest detailed status?

The latest detailed status is: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S538; text: CR S537)

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-26.

CATEGORIES

Health