National Plan to End Parkinson’s: Research, Care, and Federal Coordination
This Act establishes the National Parkinson’s Project, aiming to prevent, cure, and slow the progression of Parkinson’s disease and related neurodegenerative conditions. It mandates increased funding and coordination of research across federal agencies, potentially leading to faster treatment discoveries and improved quality of life for patients and caregivers. The project also seeks to reduce the financial burden of the disease on families and federal programs like Medicare.
Key points
Establishment of National Parkinson’s Project: Creation of an integrated national plan focused on preventing, curing, and ameliorating the symptoms of Parkinson’s.
Enhanced Research and Care Coordination: Requires coordination of Parkinson’s research and services across all Federal agencies, including estimating necessary public investment levels.
Advisory Council Formation: Creation of an Advisory Council comprising experts, patients, caregivers, and federal agency representatives to advise on research, care, and services.
Progress Assessment and Reporting: Mandates annual assessments of national progress and biannual reports to Congress with recommendations for improving care and reducing costs for families.
Expired
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