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Protecting Reproductive and Sexual Health Data: Your Rights to Control.

The 'My Body, My Data Act' imposes strict limits on how companies (regulated entities) can collect, retain, use, and disclose your personal reproductive or sexual health information. You gain the right to access, correct, or delete this sensitive data, and companies can only collect it if strictly necessary to provide a requested product or service. This legislation grants citizens greater control over their highly sensitive health information, protecting them from unauthorized use or disclosure.
Key points
Data Minimization: Companies can only collect and use your sexual/reproductive health data to the extent strictly necessary to provide a service you requested.
Right to Access and Deletion: You have the right to request access to all data collected about you, correct inaccuracies, or direct its complete deletion. Companies must comply within 15 days and cannot charge a fee.
Privacy Policy Transparency: Companies must prominently publish clear privacy policies detailing what data they collect, why, and specifically to whom they disclose it.
Prohibition Against Retaliation: Companies cannot deny you goods or services, charge different prices, or provide lower quality if you exercise your privacy rights.
Enforcement: Violations can lead to civil action, allowing individuals to seek damages (minimum $100 per violation per day) and legal costs.
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Additional Information
Print number: 118_S_1656
Sponsor: Sen. Hirono, Mazie K. [D-HI]
Process start date: 2023-05-17