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Increased Funding and Focus on Sickle Cell Disease Treatment and Research until 2028.

This bill reauthorizes the sickle cell disease prevention and treatment demonstration program with increased funding. It expands the scope to include the treatment and prevention of complications associated with the disease. Additionally, it allows for grants, contracts, or cooperative agreements to be awarded to entities carrying out these tasks.
Key points
Annual funding is increased from $4.455 million to $8.205 million for fiscal years 2024 through 2028.
The scope of programs is expanded to include the prevention and treatment of complications of sickle cell disease.
Funding mechanisms are updated to include grants, contracts, or cooperative agreements.
It is the sense of Congress that further research should be undertaken to find cures for heritable blood disorders.
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Additional Information
Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023
Print number: S 1852
Sponsor: Sen. Scott, Tim [R-SC]
Process start date: 2023-06-07