Genomic Data Security: Protecting US Health Information from Foreign Influence
This Act aims to enhance the security of Americans' health and genomic data by imposing strict restrictions on companies linked to the Chinese government that handle this sensitive information or receive federal funding. It mandates that NIH-funded researchers disclose unapproved foreign government ties, thereby safeguarding privacy and intellectual property in medical research. Citizens benefit from increased assurance that their sensitive genetic data is protected from unauthorized foreign access.
Key points
NIH funds cannot be used for genomic sequencing services provided by companies controlled by or substantially linked to the Government of the People's Republic of China.
New requirements for laboratory certifications to disclose if the lab or its subcontractors handling US health data have ties to the Chinese government.
Establishment of a working group to develop best practices for genomic data sharing, focusing on protecting sensitive health information and intellectual property from national security risks.
Annual reporting requirement for NIH to Congress regarding undisclosed foreign government ties of grant-funded researchers.
Expired
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