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Reauthorizing Congenital Heart Disease Research and Care Program until 2029

This Act renews federal funding for the Congenital Heart Disease (CHD) research, surveillance, and awareness program until 2029. This means the government will continue collecting data and supporting research into the lifelong needs of CHD patients, including adults. For citizens, this translates into potentially better quality of care, increased knowledge about living with heart defects, and efforts to increase the number of specialists treating adult CHD patients.
Key points
Funding Extension: The Congenital Heart Disease (CHD) research and surveillance program is reauthorized for the years 2025 through 2029.
Improved Adult Care: Requires convening an expert workshop to identify research gaps and needs for adult CHD patients (mental health, quality of life, long-term outcomes).
Addressing Workforce Shortages: Mandates assessing the capacity of healthcare providers treating adult CHD patients and developing strategies to address any shortages, potentially through fellowship training programs.
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Additional Information
Print number: 118_S_3757
Sponsor: Sen. Durbin, Richard J. [D-IL]
Process start date: 2024-02-07