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Increased funding for Down Syndrome research and co-occurring conditions treatment

This Act establishes the INCLUDE research program to significantly advance knowledge about Down syndrome and related co-occurring conditions, such as Alzheimer's disease. Citizens with Down syndrome and their families can expect improved medical care, new therapies, and a better quality of life due to this focused research effort. The program authorizes $250 million annually from 2025 to 2029 to fund innovative research and clinical trials.
Key points
Establishment of the INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project) within the National Institutes of Health (NIH).
The program will focus on basic science studies, assembling a large study population of individuals with Down syndrome, and expanding inclusive clinical trials for new treatments and therapies.
Funding: Authorization of $250 million annually for fiscal years 2025 through 2029 to supplement existing NIH funds for Down syndrome research.
Research aims to identify biomarkers, understand biological mechanisms, and develop customized interventions and treatments for co-occurring conditions (e.g., autoimmune disorders, Alzheimer’s disease).
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Additional Information
Print number: 118_S_3981
Sponsor: Sen. Hickenlooper, John W. [D-CO]
Process start date: 2024-03-19
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OFFICIAL LEGAL TITLE

DeOndra Dixon INCLUDE Project Act of 2024

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_S_3981.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2024-03-19.

What are the main provisions?

Key points include:

  • Establishment of the INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project) within the National Institutes of Health (NIH).
  • The program will focus on basic science studies, assembling a large study population of individuals with Down syndrome, and expanding inclusive clinical trials for new treatments and therapies.
  • Funding: Authorization of $250 million annually for fiscal years 2025 through 2029 to supplement existing NIH funds for Down syndrome research.
  • Research aims to identify biomarkers, understand biological mechanisms, and develop customized interventions and treatments for co-occurring conditions (e.g., autoimmune disorders, Alzheimer’s disease).
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Hickenlooper, John W. [D-CO].

What is the latest detailed status?

The latest detailed status is: Introduced in Senate

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-26.

CATEGORIES

Health