What is the official ID of this bill?
The official print number for this legislation is S 3981.
Increased funding for Down Syndrome research and co-occurring conditions treatment
This Act establishes the INCLUDE research program to significantly advance knowledge about Down syndrome and related co-occurring conditions, such as Alzheimer's disease. Citizens with Down syndrome and their families can expect improved medical care, new therapies, and a better quality of life due to this focused research effort. The program authorizes $250 million annually from 2025 to 2029 to fund innovative research and clinical trials.
Key points
Establishment of the INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project) within the National Institutes of Health (NIH).
The program will focus on basic science studies, assembling a large study population of individuals with Down syndrome, and expanding inclusive clinical trials for new treatments and therapies.
Funding: Authorization of $250 million annually for fiscal years 2025 through 2029 to supplement existing NIH funds for Down syndrome research.
Research aims to identify biomarkers, understand biological mechanisms, and develop customized interventions and treatments for co-occurring conditions (e.g., autoimmune disorders, Alzheimer’s disease).
Status:
Expired
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