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New Sickle Cell Treatment Centers: Better, Coordinated Lifelong Healthcare Access

This law establishes a nationwide network of specialized Sickle Cell Disease Treatment Centers using a "hub-and-spoke" model. The goal is to ensure patients have access to coordinated, comprehensive medical care throughout their lives, including advanced therapies and social support. Citizens affected by this disease will gain better access to specialists, assistance with insurance, and help addressing daily challenges like transportation or food insecurity.
Key points
Creation of "hub-and-spoke" networks to deliver comprehensive care, including stem cell transplants and gene therapies, led by specialized medical centers.
Implementation of programs to improve the transition of patients from pediatric to adult care, ensuring continuity of treatment.
Funding for assistance with accessing health insurance, social services, genetic counseling, and transportation for patients.
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Expired
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Additional Information
Print number: 118_S_5226
Sponsor: Sen. Van Hollen, Chris [D-MD]
Process start date: 2024-09-25
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Summarized by: gemini-flash-latest
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Sickle Cell Disease Treatment Centers Act of 2024

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 118_S_5226.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2024-09-25.

What are the main provisions?

Key points include:

  • Creation of "hub-and-spoke" networks to deliver comprehensive care, including stem cell transplants and gene therapies, led by specialized medical centers.
  • Implementation of programs to improve the transition of patients from pediatric to adult care, ensuring continuity of treatment.
  • Funding for assistance with accessing health insurance, social services, genetic counseling, and transportation for patients.
What is the specific legal status?

The current status is Expired.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Van Hollen, Chris [D-MD].

What is the latest detailed status?

The latest detailed status is: Introduced in Senate

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-26.

CATEGORIES

Health